Thursday, November 21, 2013

Grief's Denial and Acceptance

Analytical Frenzy

This week in my microbiology class we delved into the intricacies of antibodies, vaccines, and latent viral infections.  My brain went crazy with the flood of new knowledge related to CMV. . . Since there were only three of us in class on this snowy day, I got the chance to ask many of the questions that have been circling my brain . . .

Why isn't there a vaccine for CMV but we have one for chicken pox (which is related)?
Could I have directly given Evie my serum (and CMV antibodies) to help her fight the infection?
Why do certain viruses like chicken pox and CMV stay latent in you forever?
What are the chances they'll start replicating again and causing symptoms?
Why do some viruses cross the placenta while others don't?
Why do some viruses cross the blood-brain barrier while others don't?
Do antibodies cross the placenta?  If yes, do all of them or just some of them? Why?
How do fetus immune cells "learn" what is self and what is invader?  How can we help educate those cells?
Besides vaccines and immunoglobin, how can doctors support antiviral immune function in neonates?

There were even more questions than that. . . it was a firestorm of questions.  My poor professor gave me a lot of "I don't know." She also gave me a lot of, "That is a very active field of research right now."  I was left stressed and worried, wishing I had known enough to ask some of those questions when Evie was alive.  I was also left with traumatic flashbacks of conversations with doctors.  In fact, this analytical firestorm brought back many of the terrible heartbreaking moments of our time in the NICU- I was always trying to understand exactly what was happening inside her body.  But understanding and being able to DO something were very far separated from each other.

Intellectual Rebellion

I came home and thought about my need to understand the very complicated ins and outs of Evie's infection.  Why?  Why can't I leave it alone and accept that what happened just happened? It was out of my control! 

I have read all about the "stages of grief" and found them to be an annoying bunch of lies that minimize the true experience of grief.  But today I thought- aha!  My "denial stage" is manifesting as intellectual rebellion.  I am trying to find scientific reasons why the terrible thing that happened is impossible.  And on the other hand, if I can learn to explain precisely how it happened, then maybe I can accept that it did happen.  Taking microbiology (and interrogating my professor) are my ways of coming to accept Evie's death.

Friday, November 8, 2013

Rainbows


A Rainbow Baby is a baby you have after experiencing the loss of a baby.  Rainbows come after storms carrying happiness and light. . .  At the same time, they don't negate the storm.  They remind you of the dark that came before.

We have a rainbow coming in April.  We were taking precautions (or so we thought!) but I ended up missing my period at the end of July.  I knew instantly I was pregnant, even after 3 negative pregnancy tests.  Sure enough, a blood test came back positive in mid-August.  It was very much a surprise, because we had decided to wait a while for emotional and physical reasons: My OB said it's good to wait about a year before trying so that the C-section can completely heal.  I was also feeling very raw still about Evie, finding it difficult to imagine how to love another baby after everything we've been through. 

Truthfully, it was a shock- and very scary- at first.  Of course we were planning to try for another baby at some point, but this was way too soon.  Kabir was distressed and worried about my health and the new baby's health.  Meanwhile, I felt very deep guilt about somehow "replacing" Evie.  I still worry that we are being too hasty.  I worry that we are not honoring Evie's life and her spirit by adding another family member so soon.  I have felt ashamed and kept the news pretty quiet.  Normally I'd probably blurt this kindof thing out the second I knew about it, but guilt, shame, and fear have kept me from sharing about our little rainbow until now.

A few months have gone by since we got the news, and we are slowly adjusting to the idea that this is really happening.  I know my close family and friends are happy for us, and we are mostly happy now too.  But being pregnant is not the healing gift it might seem.  I struggle daily with all kinds mixed emotions about everything our family is going through.  I think often about Evie and her short, hard life and wish she could be here and be healthy.

Physically, I am feeling very well, although my OB has been following things very closely.  Fortunately, CMV is like chicken pox- once you have had it, your body has built up defenses and it is not going to kick back up and affect future pregnancies.  I am still of course on edge from time to time about any possible complication.  I felt our new baby move for the first time about a week ago, and I felt a GIGANTIC sense of relief. 

I have already put on quite a bit of weight and my belly is pretty big already.  New friends at school have started asking me whether we have a little one coming.  I can't really hide it anymore- so here we go- the news is out!  If you see me out and about, you won't have to wonder.  Yes.  We have a tiny rainbow on the way...