Sometimes, This is How it Goes. . .

Evie is sicker than ever and is in danger of dying a sudden, painful death.  Her viral count has shot up to ten times her level at birth, which explains her new and worsening symptoms.  On top of that, her doctors discovered some very dangerous swollen veins in her esophagus, which could rupture easily and cause Evie to bleed to death.  These veins could rupture from eating, coughing, or vomiting.

At this point we’re not sure whether there is any solution for Evie.  She cannot have the veins removed because her platelets are so low that she would bleed out from the procedure.  She cannot have more antiviral medicine because she would again suffer deadly side effects on her liver.  There is an experimental drug that might reduce the viral load, but would likely have deadly effects on her kidneys and bones.  And even if we were to reduce the viral load, it is likely that Evie would still be extremely sick anyway because of all the damage already done to her body.

So we are considering terminating treatment . . .

I am still trying to find words to express everything right now, but the words don’t come.  I am sorry.  Please know that at least Evie is comfortable right now.

Here is Evie, peacefully resting this morning.