Monday, April 15, 2013

Bittersweet


New Specialist
Today I spoke with 2 of Evie's doctors, and they both agree that it's time to bring in a specialist to evaluate Evie's liver.  The CMV infection might not be the whole story there. . . typically the liver heals more quickly than Evie's, especially after 4 weeks of the antiviral medicine.  Since Evie is still so fragile and sick, they cannot do a biopsy of her liver.  I am really hoping they can figure out the problem by looking at her blood work.  I am also really hoping that whatever they find is easily treatable!!!  I am scared.

Failed Attempt off Breathing Tube
Also today, Evie's breathing tube was taken out around 1pm.  The doc put oxygen on a nose tube for her and we watched to see how she did.  Unfortunately she was heaving and heaving pretty hard and not quite able to breathe well enough- At 4:30 they decided to re-intubate her.  I wasn't really too disappointed.  (I already knew she wasn't quite ready. . . )

Mommy and Baby
The best part of the day was when I got to hold Evie for a whole hour before they took her off the ventilator.  I watched as she melted into my arms and fell peacefully asleep.  I put my finger in her hand and she grasped it. I gazed at her.  I cried and cried like an idiot.  It was a glimpse into the future, when I will get to hold Evie and gaze at her in my arms all the time. . . So bittersweet.


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