March 30, 2013
Evie is still very very sick, and we thank you for your continued support and prayers. She has made some progress in that she requires fewer transfusions now and her liver and spleen are recovering. We found out yesterday that the virus has not affected her eyes- which is great news! Evie's doctor sounds pretty certain that Evie will survive, but there is no way to predict whether/how Evie will be disabled after the infection subsides.
For now, Evie's body is very swollen since the virus causes fluid to build up under her skin. She gets red blood cells, IV feeding/fluids, and platelets regularly. She also gets medicine to support her blood pressure, urine production, and comfort level. She still is on a high-power oscillating ventilator. She is still on her anti-viral drug, gancyclovere, which slows viral reproduction and decreases the chance of hearing loss.
In the short term, we are praying for her blood pressure to stabilize so that she can switch to a more comfortable ventilator. We are also praying for a decrease in fluid (edema) under her skin- which would signal better urine production and a lower viral load.
It is easy to get sucked into fear and worry, but we are trying to stay positive and stay informed!
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